The Jordyn Cook Epilepsy Fund, Inc. (JCEF) was created in 2006 to fund our mission to educate the community about epilepsy and its impact on all those affected by the disease: the individual, family and community.
The first goal of JCEF is to fulfill a $350,000 pledge to fund Mass General's "Growing Up with Epilepsy", web site. This interactive web site features the stories of eight families who deal with childhood epilepsy. The stories depict the families' struggles and success with the disease. This site is a way for everyone to learn about epilepsy, whether they are a family newly affected, have a friend struggling with the disease, or are an educator dealing with epilepsy in school. The goal is to provide clear information about childhood epilepsy, its diagnosis, and treatment and to educate visitors about the disorder's effects on learning, behavior, and family life.
The Fund is named after Jordyn Cook who was diagnosed with Epilepsy at age 3; Jordyn is now 10. She has been through 11 medications, had brain surgery, and a vagus nerve stimulator implanted in her chest. Although Jordyn has difficulty with fine motor skills, she is a formidable shot at basketball, loves to skate and practice karate and is an award-winning climber at Camp Wee-Kan-Tu, a Duxbury summer camp for children with seizure disorders.
The Mass General site can be accessed through the Jordyn Cook Epilepsy Fund, Inc. site (www.jordyncookepilepsyfund.org) where you can find recent articles about Jordyn and our fundraising efforts.